Monday, March 21, 2011

SPRING (give her a) BREAK!

Well, it's here! The time that all students (elementary, middle school, high school, and college) wait for...SPRING BREAK!
It's that break that's not too cold, not too hot, and means that it's almost time for school to be over and on to the next chapter.

While some of our friends are making trips to Cancun or Kansas City...we are making a trip to the hospital.

Even though Maddy has done well with weight gain, her lung function hasn't improved much since November. It was time to make a move.

I took some leave during the week of Spring Break so we could head down to Louisiana but it didn't work out that way.

Maddy was pretty upset when she first found out we had to go to the hospital and who wouldn't be. So, even though Maddy has to tough it out this week (and next) for the better of her health, we have decided to postpone the fun of Spring Break for another time.

Instead, we tried to find some positives in being in the hospital. Maddy gets to wear her pajamas all day long, she gets to eat junk food all day long, she rode in a wheelchair, I fed some things to her, she got to watch her channel all day long, and play her DSi. I know that it is easy for me to see the good in a "tough" situation but I also have to get to her level too.

Right before they did the I.V. I noticed a change in Maddy's demeanor. "Maddy, it's okay to cry," I said to her, "you don't always have to be strong." Then she cried. I hugged her and kissed her forehead and then the nurse walked in. I then noticed her demeanor change was "GO" time. She took it like a champ and was ready to "fight." Maddy is ready to fight C.F.

We don't always know the things that will happen. People say to have faith. I think that is true but I also believe "Thy will be done." God is so merciful, sovereign, and just. I know HE doesn't like seeing Maddy go through physical much more with emotional pain. It hurts HIM as well. We just lean on HIM and trust.

"Trust in the Lord with all your heart and lean not on YOUR own understanding."-Prov. 3:5


Jeremy said...

Thank you for writing this blog, Babe. I am very thankful for the great job that you are doing in handling these things while I'm gone. I want to thank you both for being in my life and for having the will and faith to fight these diseases. I am very proud of both of you and am proud of the courage that you have. I love you both and miss you very much. Thank you for the photos and the updates. I love you!

Mr. Randy said...

Maddy, you are such a strong little lady and truly an inspiration to me! And you have an awesome mom and dad too! Hang in there and Jeanie and I will be praying for you to get better real soon.
Love you!
Mr. Randy